Fundamental ethical issues
Preface by Prof. Jean-Marc ALBY
Director of the Centre for Medical Ethopsychology, Université Pierre et Marie Curie, Paris.
In this book, Viviane Janouin-Benanti selected 65 interviews of people living with HIV, AIDS and relatives, grouped by topic. Each of them is introduced in order to better highlight the broad types of behaviour facing and around the disease and the ethical issues raised.
The first part describes the different individual reactions to the announcement of HIV status. They are concentrated around the experience of time and classified into five types of reactions. A general description introduces each of them, followed by the testimony of people living with HIV, AIDS or their relatives.
- The revelation of time describes the awareness of time at the announcement of HIV status. The HIV-positive person between death and life realizes the "value of the moment".
- The time destroyed shows the rupture with "normal life". HIV-positive or AIDS-positive people flee into activism. This type of reaction represents a kind of suppression of the disease that results in spectacular and provocative actions.
- With the time of denial, we lose ourselves in the introspection of the past. We're looking for the culprit of his misfortune. One finds it either in oneself (which leads to an identity crisis), or in others, which provokes revenge...
- Those who devote themselves entirely to the management of daily life and the eternal repetition of medical "ceremonies" experience the time stopped. Il organise sa vie autour de sa maladie.
- The time under control describes the effective action of people living with HIV and AIDS in associations.
In the second part, Viviane Janouin-Benanti develops the status of the patient throughout the history of Public Health... Accompaniment of patients, dignity of the person at the end of life, protection of toddlers, freedom and medical secrecy, protection of third parties, health and work, HIV and insurance, health economics and ethical choices, European and global dimension of HIV ethics, all these issues are addressed by the author.
Statistics, practical pages, addresses and an important bibliography complete the book.